Organizations
The following list of international, national and statewide organizations offers resources on everything from state-specific groups similar to End of Life Choices California, to national organizations seeking to protect existing state laws such as California’s EOLOA and to expand MAID laws in new states, to organizations supporting the medical provider and caregiver communities or those focused on other topics broadly related to advance health care planning, death and dying.
…in other states:
ALS Association
ALS Association provides education, advocacy and information about amyotrophic lateral sclerosis (ALS, also known as Lou Gehrig’s disease). Whether you’re newly diagnosed, navigating your journey with the disease, caring for a person with ALS, or researching the cure, there are resources to support you.
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American Clinicians Academy on Medical Aid in Dying
The Academy provides a Patient-to-Doctor Referral System; an Information Update and Discussion Listserv; a series of Video Interviews with leaders in the field discussing pressing issues and concerns; a Patient Information Portal; Research and Data Analysis; Resident and Medical Student Trainings; Certified Online Continuing Medical Education for Nurses, Social Workers, and Physicians. As well, the Academy will be providing expert consultations for clinicians facing complex bedside decisions about medical aid in dying.
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California Hospice and Palliative Care Association
Established in 1986, CHAPCA is headquartered in Sacramento, CA. CHAPCA is governed by the Board of Directors,whose members are responsible for setting the policy of the association.
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Caregiver Action Network (CAN)
CAN offers caregiving tips and on-line resources including a support network and resource guides and is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.
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Clearing House for Longterm Care
The Administration for Community Living, an agency of the U.S. Department of Health and Human Services, brings together the efforts and achievements of the Administration on Aging, the Administration on Intellectual and Developmental Disabilities, and the HHS Office on Disability to serve as the Federal agency responsible for increasing access to community supports, while focusing attention and resources on the unique needs of older Americans and people with disabilities across the lifespan.
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Coalition for Compassionate Care
The Coalition for Compassionate Care of California (CCCC) promotes high-quality, compassionate care for everyone who is seriously ill or nearing the end of life.
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Compassion & Choices
Compassion & Choices improves care, expands options and empowers everyone to chart their end-of-life journey. We envision a society that affirms life and accepts the inevitability of death, embraces expanded options for compassionate dying, and empowers everyone to choose end-of-life care that reflects their values, priorities, and beliefs.
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The Conversation Project
The Conversation Project is a public engagement initiative with a goal that is both simple and transformative: to have every person’s wishes for end-of-life care expressed and respected.
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Death With Dignity
The mission of the Death with Dignity National Center is to promote death with dignity laws based on our model legislation, the Oregon Death with Dignity Act, both to provide an option for dying individuals and to stimulate nationwide improvements in end-of-life care.
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Hemlock Society of San Diego
The Hemlock Society of San Diego is a 32 year old 501 (c)(3), not-for-profit, volunteer, educational organization. Our mission is to provide education to the San Diego community about all end of life choices. We believe that people should be able to die consistent with their own beliefs and values and with proper, current information.
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Orphan Wisdom
Stephen Jenkinson is a teacher, author, storyteller, spiritual activist, farmer and founder of the Orphan Wisdom School, a teaching house and learning house for the skills of deep living and making human culture. It is rooted in knowing history, being claimed by ancestry, working for a time yet to come. Visit them online